About Muscular Dystrophy Logo, Downriver Michigan
There are many reasons for this page. While there is much information on Muscular Dystrophy on the Internet and various other places. I wanted to provide a place where much of that information could be located easily.

Let me make it perfectly clear that I am neither a doctor or any other type of health care professional. My only knowledge comes from the fact that I have a form of MD called Friedrich's Ataxia. I have spent some time looking for information and possible treatments which I will share with anyone here.

I invite anyone to share any knowledge they may have with visitors to this site. Simply email me

If you read as much as I have from the conventional medical field you tend to lose hope of a treatment or cure.

My feelings are do as much as you can. I never accept what the doctors tell me and I do things they say I can't do. My younger brother never let his condition stop him as long as he could keep going he did and attempted things even I didn't consider.

Do you have a poem or story? Send it here

I'm afraid there was no way to make this short as there is lots of information here. Some may apply to many people and some only to me. I have to make another point here...I use homeopathic remedies, some people have a very difficult time accepting that and if you are one of the people are unwilling to consider them I would suggest that you not even read any further.
I asked the homeopath one day who is helping me what advice I could give people with one of the forms of MD? His answer was "Get to a good homeopath as soon as possible"

Dec 2008

Was having trouble with a cold. Reverted back to a remedy I took some time ago at the end of the month.
Tues Dec 3 2008. Feet were ok last night. Kept waking up. Sore all when I got up (extremely stiff). Ears still ringing.

Sat Dec 6 2008. Feet felt cold last night (right was colder), legs felt cold too. Couldn't seem to get to sleep then had trouble waking up. Legs felt like they were about to cramp when I got in bed. Ears still ringing and it keeps feeling like there is something in there. Legs pretty weak today, was difficult to stand. My doctor told me to go up in potency with the Con, haven't been able to order it yet so I'll succuss what I have more in the meantime. Taking it tonight.

Sun Dec 7 2008. Right foot was a little cool in bed. Legs still felt like they were about to cramp. Legs very weak when I got up today. Ears still ringing loud. Nose has been plugged up. Right shoulder hurts from laying on it.

Mon Dec 8 2008. Right foot felt so cold it hurt last night, couldn't get comfortable, got headache every time I lay on left side and right foot hurt when I lay on right side. Had trouble getting to sleep. Legs very weak when I got up. Ears ringing loud. Taking Con again tonight.

Tues Dec 9 2008. Feet had sensation of being cold last night but were better. Still had trouble going to sleep. May have had a little more ambition today but could have been a result of necessity. Legs still weak and ears still ringing loud.

Wed Dec 10 2008. Feet were not too bad last night, right foot did hurt when I would lay on right side. Had trouble going to sleep. Still very weak when I got up. Chest is raw like a cold settling in with a bit of a headache. Ears still ringing. Taking a dose of Ars tonight.

Thurs Dec 11 2008. Feet didn't seem too cold last night. Feet hurt about the same. Still weak when I got up. Ears ringing very loud. Chest still feels like a cold but have started coughing some and it's kind of loose. Taking another dose of Ars tonight.

Fri Dec 12 2008. Feet were warm last night but legs hurt. Cold has moved from chest into head, plugged up all day with nose running at times and a headaches on and off. Ears still ringing loud. Left foot hurting pretty bad tonight. Switching remedy to All C.

Sat Dec 13 2008. Having lots of trouble with cold symptoms, still mainly in head and stay very tired. Ears still ringing. Taking the cold remedy several times a day.

Sun Dec 14 2008. Didn't sleep well last night (nose kept dripping). Ears still ringing and have been getting dizzy. Still very tired and sleepy all the time.

Mon Dec 15 2008. Feet were ok last night but left ankle hurt when I lay on right side. Cold seems to be getting better, nose not dripping much, getting a loose cough. Ears ringing loud and still get dizzy when I stand. Had a sore back all day (left side low). Left foot and leg started hurting tonight.

Tues Dec 16 2008. Nose has been plugged up on left side, stringy discharge. Have felt a little better but the cough is worse. Left foot still hurts some. Ears still ringing and still get a little dizzy when I stand. Back still hurts. Still taking the cold remedy but it looks like I may have to change it.

Wed Dec 17 2008. Back pain is starting to wear me down. Have been so sleepy early then have trouble going to sleep when I lay down. Nose still plugged up, sticky discharge. Ears still ringing.

Thurs Dec 18 2008. Back still hurts. Feet hurt quite often, especially at night. Cough is getting more loose. Ears still ringing. Taking a dose of Sep tonight.

Fri Dec 19 2008. Legs hurt in bed last night. Back pain seems worse (hurts to move) and pain goes all the way to left foot. Ears still ringing.

Sat Dec 20 2008. Back seems to hurt worse today. Take spells of being very tired and sleepy but have trouble sleeping when I go to bed. Keep getting dizzy when I stand. Ears still ringing.

Sun Dec 21 2008. Everything pretty much the same.

Mon Dec 22 2008. Cold is a little better, still have some congestion but no runny nose etc. Back still hurts but not quite as bad. Ears still ringing. Will take the Con tonight.

Thurs Dec 25 2008. Cold is ok. Back still hurts and right hand hurts (around knuckle of little finger, sharp pain when I move finger but not sore to touch). Headache in left eye. Ears still ringing.

Fri Dec 26 2008. Right hand is really hurting today. Still have a bit of a headache in left eye. Ears ringing really loud. Taking Calc C tonight.

Sat Dec 27 2008. Right hand hurt bad and left started cramping. Had a bit of a headache all day and was very tired and a little irritable. Ears didn't ring quite as bad. Back hurt but maybe not as bad.

Sun Dec 28 2008. Hand not as bad. Neck felt strange all day. Legs very weak. Ear ringing not too bad. Taking Con tonight.

Mon Dec 29 2008. Hand, foot and head all hurt last night, everything on the right side. Couldn't get to sleep.Both ankles turning when I would stand today (they always do that but it seemed worse today). Haven't been able to have a stool for about 3 days now and stomach is very sore. Neck hurts tonight. Taking a dose of Plb Met (5 succussions).

Tues Dec 30 2008. Right hand wasn't as bad last night, right leg and foot still hurt keeping me awake. Right hand seemed better today but left hand started cramping tonight. Right foot had sensation of being cold last night (like a burning pain) but warm to the touch. Right ankle turning worse than left when I would stand today. Ears ringing.

Wed Dec 31 2008. Hands were ok last night. Right foot still hurt. Get a stiff neck and a headache every night. Got a sharp pain in left side of stomach just under ribs today, a couple of hours later I had a stool. Right ankle still turns. Feet were warm last night but right foot still felt cold with the burning pain. Ears ringing very loud today.
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