About Muscular Dystrophy Logo, Downriver Michigan
There are many reasons for this page. While there is much information on Muscular Dystrophy on the Internet and various other places. I wanted to provide a place where much of that information could be located easily.

Let me make it perfectly clear that I am neither a doctor or any other type of health care professional. My only knowledge comes from the fact that I have a form of MD called Friedrich's Ataxia. I have spent some time looking for information and possible treatments which I will share with anyone here.

I invite anyone to share any knowledge they may have with visitors to this site. Simply email me

If you read as much as I have from the conventional medical field you tend to lose hope of a treatment or cure.

My feelings are do as much as you can. I never accept what the doctors tell me and I do things they say I can't do. My younger brother never let his condition stop him as long as he could keep going he did and attempted things even I didn't consider.

Do you have a poem or story? Send it here

I'm afraid there was no way to make this short as there is lots of information here. Some may apply to many people and some only to me. I have to make another point here...I use homeopathic remedies, some people have a very difficult time accepting that and if you are one of the people are unwilling to consider them I would suggest that you not even read any further.
I asked the homeopath one day who is helping me what advice I could give people with one of the forms of MD? His answer was "Get to a good homeopath as soon as possible"

Jan 2009

Was having trouble with a cold. Hurt finger. Didn't make much headway this month.
Thurs Jan 1 2009. Right foot was a little cool last night but it didn't burn. Had to keep turning over to ease the leg pain. Very stiff when I got up, stiff neck and headache. Ears still ringing loud. Left foot jerking tonight. Taking Con tonight.

Fri Jan 2 2009. Right foot cold last night but not painful. Went to sleep a little faster. Bladder has been a problem all day, seemed to be full constantly. Neck was stiff all day and kept getting a slight headache in left eye. Ears ringing. Gas pains tonight but kind of constipated.

Sat Jan 3 2009. Lay down on the couch last night rather than going to bed. Feet hurt and I kept waking up with an electric sensation in my neck and head. Ears ringing very loud. Have had the bladder problem for a couple of day and found out today that my wife has been using Folgers coffee recently and that brand will run me to the bathroom whenever I drink it. Left foot started hurting tonight (feels like shoe is tight and foot burns).

Mon Jan 5 2009. Stayed up all night, everything hurt. Legs very weak today. Ears still ringing. Bladder still a problem today (still same reason). Hands started cramping again today. Taking Plb Met tonight.

Tues Jan 6 2009. Feet felt cool and to touch was the same. Legs were kind of cold. Have a sore on my tail bone that is very sore. Bladder was a little better. Stomach is very sore.

Wed Jan 7 2009. Feet were a little cool last night. Woke up with an electric like sensation in my neck and head in the middle of the night. Had a really strange dream just before waking up this morning. Bladder has been better. Ears ringing louder than ever. Legs and feet have hurt some today. Stomach has been sore.

Thurs Jan 8 2009. Feet felt cold last night and hurt. Couldn't get comfortable. Neck was stiff when I got up. Bladder was full all day, urinating frequently. Ears ringing loud.

Fri Jan 9 2009. Right leg and foot cold last night, left was warm. Tossed and turned all night (sun was coming up was the last thing I remember). Right leg and foot hurt when I would turn on left side and right shoulder hurt when I turned on right side. Nose has been plugged with a bad taste in mouth. Ears ringing loud.

Sat Jan 10 2009. Feet were warm enough last night. Lightheaded all day, dizzy and sinus problems. Got a pain in left temple a couple of times. Ears still ringing.

Mon Jan 12 2009. Couldn't sleep last night. Getting a sore throat today with burning in right nostril. Ears ringing loud. Taking Con tonight.

Fri Jan 16 2009. Cold got really bad. Nose plugged up, head hurts. eyes get sore, dizzy and tired all the time. Jammed finger on left hand causing pain and swelling. Having trouble sleeping even though I'm extremely tired. Cold is just now starting to ease up. Have to change remedies as symptoms change.

Sun Jan 18 2009. Cold is maybe a little better, wake up with a stiff neck and headache, eyes get sore and am still very tire with a persistent cough. Ears ringing very loud. Swelling a little better on left hand and a little less pain after taking some Arnica Fri Night. Last night right foot was warm and left was like ice (just the opposite of what it normally is).

Wed Jan 21 2009. Still have the cough. Nose runs frequently and some sneezing. Ears still ringing loud.

Fri Jan 23 2009. Slept on the couch last night. Feet hurt all day after left hand hurting all night. Took a dose of Con last night. Still plugged up all the time. I can breathe through my nose some now at least. Ears still ringing loud.

Mon Jan 26 2009. Feet were ok last night. Still have stuffed up nose. Ears still ringing loud.

Wed Jan 28 2009. Right foot was a little cold to the touch last night, left was warm. Woke up with a lot of congestion and a headache in base of skull. Left hand still hurts. Tired and sleepy all day. Ears still ringing. Taking Arn for the pain and swelling of hand.

Thurs Jan 29 2009. Slept on couch last night. Left hand hurt pretty bad. Had to cut my ring off today because of the swelling. Ears still ringing.
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