|There are many reasons for
this page. While
much information on Muscular Dystrophy on the Internet and various
places. I wanted to provide a place where much of that information
be located easily.
Let me make it perfectly
clear that I
am neither a doctor or any other type of health care professional.
My only knowledge comes from the fact that I have a form of MD called
Ataxia. I have spent some time looking for information and possible
which I will share with anyone here.
I invite anyone to share
any knowledge they
may have with
visitors to this site. Simply
If you read as much as I
have from the
field you tend to lose hope of a treatment or cure.
My feelings are do as much as you can. I never accept
what the doctors tell me and I do things they say I can't do. My
younger brother never let his condition stop him as long as he could
keep going he did and attempted things even I didn't consider.
Do you have a poem or
I'm afraid there was no way to make this short as there
is lots of information here. Some may apply to many people and some
only to me. I have to make another point here...I use homeopathic
remedies, some people have a very difficult time accepting
that and if you are one of the people are unwilling to consider them I
would suggest that you not even read any further.
asked the homeopath one
is helping me what advice I could give people with one of the forms of
MD? His answer was "Get
to a good
as soon as possible"
Seem to have cold
symptoms often this month with headache etc.
Oct 2 2008. Very cold last night. Didn't take remedy. Ears ringing very
loud today. Ankles didn't turn too bad today. Stomach was sore all day
yesterday with constipation, not as sore today but when I did get sore
I had a pretty loose stool. No remedy tonight.
Fri Oct 3 2008. Right ankle turns some today. Getting a headache
tonight. Taking remedy tonight 15 succussions.
Sat Oct 4 2008. Ankles turning today. Ears ringing. Mostly same
symptoms. Trying a dry dose tonight.
Mon Oct 6 2008. Feet were cold last night. No change in anything.
Tues Oct 7 2008. Left foot jerking with pain (outside of ankle). Was
cold last night so I put extra covers on and they felt so heavy on feet
they hurt (more on right foot around big toe). Taking dry dose tonight.
Sat Oct 11 2008. Slept late today. Woke up with headache (frontal and
occiput), never got as bad as they used to get but brain felt loose
like it was bouncing around. Late tonight I started getting an upset
stomach. Legs were extremely weak when I got up and the last 3 days
have been having trouble holding bladder. Taking dry dose tonight.
Tues Oct 14 2008. Went to bed late and couldn't get to sleep. Right
shoulder has been hurting and have to sit up to turn over in bed.
Bladder has eased up a little. Legs still weak.
Wed Oct 15 2008. Couldn't get to sleep again. Feet cold and had to keep
getting up with a full bladder. Had intended to take the remedy before
bed and forgot. Woke up with a headache coming from my neck, never got
Sun Oct 19 2008. Feet felt cold and hurt last night. Slept late, head
hurt (finally eased up), ears ringing very loud and neck stiff. Kind of
down all day. Ankles turning and legs weak. Taking dry dose tonight.
Mon Oct 20 2008. Feet hurt again last night. Slept late, ears ringing
loud still. Can't pick feet up today. No remedy.
Sat Oct 25 2008. Have been pretty down the last few days (finances).
Haven't been able to make myself do anything. Ears have been ringing
loud and can't seem to pick feet up. Legs stiff and weak. Taking remedy
Sun Oct 26 2008. Got up early today. Still down with weak legs and ears
ringing. No remedy.
Mon Oct 27 2008. Slept later today. Legs weak and ankles turning. Still
a little down. Ears still ringing.
Tues Oct 28 2008. Turned over in bed and back started hurting (left
side between belt line and shoulder blade). Was still hurting when I
got up. Finally eased up by the time I was ready to go to bed tonight.
Stiff all day with a slight headache. Still have no real ambition. Feet
had sensation of being cold last night but were warm to the touch.
Shoes felt tight all day. Taking a dose of Sul tonight.
Wed Oct 29 2008. Feet were ok last night but legs from the knees down
were cold. Woke up very stiff and left calf cramping. Had a headache
all day (back of neck and in eyes), sensation of brain moving around.
Thurs Oct 30 2008. Cold on right side last night. Gas pains on left
side of stomach. Everything else the same. Taking Sul again because
feet seem to be swelling again.
Fri Oct 31 2008. Just haven't felt good today (no energy, nausea,
sneezing, runny nose and tired). Taking a dose of Ars tonight.