About Muscular Dystrophy Logo, Downriver Michigan
There are many reasons for this page. While there is much information on Muscular Dystrophy on the Internet and various other places. I wanted to provide a place where much of that information could be located easily.

Let me make it perfectly clear that I am neither a doctor or any other type of health care professional. My only knowledge comes from the fact that I have a form of MD called Friedrich's Ataxia. I have spent some time looking for information and possible treatments which I will share with anyone here.

I invite anyone to share any knowledge they may have with visitors to this site. Simply email me

If you read as much as I have from the conventional medical field you tend to lose hope of a treatment or cure.

My feelings are do as much as you can. I never accept what the doctors tell me and I do things they say I can't do. My younger brother never let his condition stop him as long as he could keep going he did and attempted things even I didn't consider.

Do you have a poem or story? Send it here

I'm afraid there was no way to make this short as there is lots of information here. Some may apply to many people and some only to me. I have to make another point here...I use homeopathic remedies, some people have a very difficult time accepting that and if you are one of the people are unwilling to consider them I would suggest that you not even read any further.
I asked the homeopath one day who is helping me what advice I could give people with one of the forms of MD? His answer was "Get to a good homeopath as soon as possible"

Sept 2008
Started a different remedy. Haven't noticed much so far.
Thurs Sept 4 2008. Ordered my next remedy last night. Didn't get much sleep. Feet were jerking yesterday and legs were very weak. Legs weak and sore today. Ears still ringing loud.

Tues Sept 9 2008. Remedy came yesterday. Made it up today. Couldn't sleep last night and got up about every 2 hours to urinate (have to remember not to drink coffee at night). Legs lock up when I try to sit down. Ears still ringing very loud. Felt like a cold coming on last night, sneezing, runny nose and burning in sinuses, took a dose of Ars and it seemed to help. Taking the Conium tonight (5 succussions).

Wed Sept 10 2008. Nothing seems to have changed since the remedy. Taking a second test dose tonight.

Thurs Sept 11 2008. If there has been a change it hasn't been enough for me to notice. Very bad gas pains all day and sore stomach. Taking third test dose tonight.

Fri Sept 12 2008. Don't think it was from the remedy (ears rang so bad for awhile today but I think it was from humidity). Haven't noticed much else. Will keep watching and take remedy again tomorrow if no difference.

Sat Sept 13 2008. Haven't felt well today, sinus headache and a little dizzy with ears ringing. Took remedy 5 succussions.

Sun Sept 14 2008. Had a lot of flatulence today. Couldn't have a stool but passed gas from every exertion. Feet have been getting cold for the last few nights. No remedy tonight.

Mon Sept 15 2008. A little more difficult to hold bladder today. Feet got cold last night but not quite as bad. Have a sore spot on back left side of neck. Still getting a little dizzy and off balance when I stand and right ankle turns. Taking remedy 6 succussions.

Tues Sept 16 2008. Feet were not quite as cold last night but everything else has been the same. No remedy tonight.

Wed Sept 17 2008. Feet were cold last night (kept me awake). Legs stiffen and lock straight out when I sit down. Legs jerking occasionally and feel weak. Feet starting to burn. Taking remedy 7 succussions.

Thurs Sept 18 2008. Feet had sensation of being very cold but not cold to the touch. Legs still stiff. Feet hurt in bed. Stools loose. Ears ringing loud. No remedy.

Fri Sept 19 2008. No change today. Legs stiff, right ankle turning, ears ringing. Can't seem to go to sleep when I go to bed. Remedy tonight 8 succussions.

Sun Sept 21 2008. Still no change. Gas pains all day. Remedy tonight 9 succussions.

Mon Sept 22 2008. Feet felt a little cold last night. Had some gastric problems today, had to go 3 times. Ears ringing very loud. Ankles didn't seem to turn as bad. No remedy tonight.

Tues Sept 23 2008. Seem to have sinus issues (nose plugged up, ears plugged up and ringing louder than normal, sound nasally). Taking remedy tonight 10 succussions.

Wed Sept 24 2008. Sinus etc didn't seem to be as bad all day. Started feeling a little plugged up tonight. Seems like the remedy last night helped it some so I think I will take it again tonight. Ears are starting to ring but it's not much worse than normal. 11 succussions.

Thurs Sept 25 2008. Cold symptoms didn't bother me all day. Throat feels a little raw tonight from drainage. Stomach was sore several times today. Feel cold tonight and feet and legs get cold in bed just about every night. Taking remedy again 12 succussions.

Fri Sept 26 2008.Feet were warm enough last night. Slept too long today and left calf was cramping when I got up and stiff neck and pain in eyes. Humidity was high. Trying the remedy in a dry dose 30c tonight.

Sat Sept 27 2008. Feet were ok last night. Got up earlier today and ankles didn't turn as bad when standing. Ears still ringing. Seems the dry dose may have done something. No remedy tonight.

Sun Sept 28 2008. Feet didn't feel too cold last night. Got up earlier than usual today. Ankles were still better. Ears ringing and had some sneezing and a bit of a cough today. Remedy seemed to cover the feeling of getting a cold the other day and the last dose was dry and it seemed to do more so I'm taking another dry dose tonight.

Mon Sept 29 2008. Feet were ok last night. Big toe on right foot hurting when I got up today. Got up early again. Ankles still not bad. Outside edge of right palm has hurt since yesterday. Got very tired and sleepy early tonight. Will try another dose of the remedy 13 succussions.

Tues Sept 30 2008. Feet were a little cold last night. Got up early again and felt really sleepy since early afternoon. It's 4am and I haven't went to bed yet. Trying another dose 14 succussions.

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